A Glimpse Into My Life

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Tag Archives: Immortal Cells

The Immortality and Identity of Henrietta Lacks

 

You walk into an inviting room and approach the receptionist’s desk. Most times, they smile in your direction and inquire as to why you are there. You sign in on the clipboard and the thought may cross your mind, “What do they do with this?” Since it’s routine, it’s fleeting. You finish signing in by confirming your information.

And then you take your seat.

You wait. 10 minutes on a great day or close to an hour on a really bad day. Finally, you hear your name called. You walk through a door and you glimpse an official-looking sign that may read: NO ENTRY UNLESS ACCOMPANIED BY STAFF. This part of the office is less inviting. Your escort knows this and tries to lighten the mood by engaging you in small talk.

“How have you been since the last time we saw you?” You step on a scale. They take a note. “Oh right! I remember. Did you manage to get that job you were applying for?” You walk down a hall illuminated by fluorescent lighting. “I know that’s right. That’s all you can do.” You walk into a room with two chairs next to a very small desk which holds a computer used for notating in your electronic chart. “You can have a seat in one of those chairs.” You sit down and explain why you’re there. If it’s a good day, it’s just a check-up.

But if it’s a bad day? There is really no telling where it will go.

You answer those questions as best you can. Your escort finishes their notations and says the words that you either welcome with anticipation or meet with dread.

“The doctor will be in shortly.”

***

Most of us have this very sterile experience when visiting our doctor’s office. While there are many people who are there for routine visits, a great majority of us often go when we feel something is wrong in our bodies. In these cases, we trust that our doctors and their staff will do right by us and give us the type of treatment that allows us to live the long lives we hope for ourselves. The expectation here is that Mothers will walk out the door to spend time with their Children. Daughters will walk out the door to spend time with their Mothers. Wives with Husbands. The expectation here is that doctors not only heal, but that they heal our bodies with good intention. But a sad trend is that if you are (1) Black, (2) poor, (3) uneducated, or (4) any combination of the first three, the likelihood is that you won’t have that experience. You won’t have the experience of being seen as a whole person with a family outside of the walls of the hospital. You, and to some extent your body, can become a fascinating specimen where the need to make a significant contribution to society and science erase the empathy that allows medical professionals to see you as a person.

That was the case with Henrietta Lacks.

Henrietta Lacks

Henrietta Lacks. Shutterstock Image.

It took me a day and a half to read the tapestry Rebecca Skloot weaved in her writing of “The Immortal Life of Henrietta Lacks.” The author does a stunning job of adding the depth of Personhood that is intentionally stripped by most scientists in their discussion of her. To many? She is a “thing”; a marvelous thing but a thing nonetheless. Skloot reminds you (the reader) that the woman behind the HeLa cell very much mattered to those she touched in life. In The Immortal Life, you learn of her impact on her children, husband, extended family, and community. Finally, you get the idea that what made her remarkable wasn’t that a damaging piece of her was immortal; but that she loved fully and completely – even in damaging circumstances. She was real. She was raw. But more than that? She had a name.

For that alone, I would recommend the book to any person who is interested in learning about the woman responsible for many of the leaps and bounds medicine has made in the last 60 years.

However, as I read this book, I felt a gathering of emotion that will easily consume anyone identifying as part of an underserved population. As a Black American woman from a low-income background who currently finds herself a part of the working poor? This book brought to surface the feeling of “Other” I was introduced to early in life by those possessing some form of societal privilege. In many instances, I was reminded of the extensive disenfranchisement and abuse Black Americans endured at the hands of those in power. This reminder left a constant knot of frustration in my throat while reading.

Other parts of me, trained social scientist, abuse survivor, and the patient living with a chronic health condition, read the book differently. “For once,” I thought, “here is a book that puts it plainly what it means to be Black and poor in the US and experience different institutions.”

As a social scientist, I appreciated the qualitative approach Ms. Skloot took in introducing those close to Henrietta Lacks. You were reminded she had a family because their voices and emotional burdens were loud, clear, and distinct on these pages. Their frustration in never receiving an answer to the ever-present question of “What happened to my Mother/Wife/Cousin/Friend?” was palpable. Their condemnation of those who would take advantage of people who trust someone because of their expertise was rightfully placed. More than that? The void of having missed a Mother/Wife/Cousin/Friend in their lives would never be filled and was only exacerbated by the assumptions they understood what was happening to their family. With the writing of this book, Ms. Skloot seemed to help fill in the missing pieces of the puzzle. This left me somewhat relieved.

As an abuse survivor, I readily recognized the cyclical and long-term damage of being harmed at the hands of close relatives. To see it take place generationally reminded me of the “Keep family business in the family!” stance many Black families take. I thought about how differently life might have been for a few of the women in the book had they received the kind of help that would let them lead a life free from worry. I wondered what would have happened if they had been advocated for. More than that? I recognized their bodies being harmed as a byproduct of having to protect the Black Family and the Black Man above protecting their own Black bodies. The intellectual toll, emotional scars, and lack of skills to cope with physical abuse was also illustrated. This left me mostly sad.

As a patient living with chronic health issues, I felt conflicted reading about a woman whose death directly contributed to my personal management of my health crises. As a Black woman living with chronic health issues? I felt anger at the thought that my cells could be used (and probably are being used) in such a fashion. I thought about the lack of accountability in meeting people where they are when explaining confusing ideas and field-specific terms. I thought about the lack of foresight many of the medical professionals seemed to possess when it came to deciding between furthering their ambitions or receiving a “No.” from a patient fully aware of the risks involved. This left me mostly angry.

As a person from a low-income background, I felt a deep connection to the environments many of the voices introduced in the book found themselves in. At any moment? I can take a trip to a neighborhood not too far away and see the implications of what happens when people are tossed to the side only to be remembered when they need to clear space for other people. In many of these instances, the faces there will look like mine – Black or Brown but noticeably absent of white faces. Understanding this, the distrust of Ms. Skloot was warranted. After all, who put people like us in those neighborhoods to begin with? Who benefitted most from programs allowing upward mobility and a chance at a life better than the one their parents experienced? The blight and subsequent effect on the welfare and well-being of the remaining Lackses spoke to the determination to make it by any means necessary. All too often, this is a story many Black Americans still find themselves tied to. This “fact of life” left me reminded with what it means to be burdened while Black.

Overall, this book was a really good (almost great) read. It was written well and comes across as thoughtfully intentioned. The biggest thing is that it finally gives the everyday person an idea of the woman being called Immortal in the medical and scientific community.

We are finally told of the woman Henrietta Lacks.